A brain injury is not only difficult for the person who has been injured, but the physical, emotional, and behavioral changes that often go hand-in-hand with a brain injury can be difficult or the spouse, family members, and friends of the brain-injured individual as well. Because recovery can progress at a slow rate that’s often accompanied by backward steps, it’s not uncommon for spouses and other loved ones to experience emotions such as fear, anger, and frustration. In addition, spouses and loved ones can find themselves navigating a world of medicine and insurance that’s completely unfamiliar to them.
An important first step in coping with a brain-injured spouse or loved one is to admit that you feel emotions such as denial, frustration, depression, and fear, and to accept that these feelings are normal. But don’t try to go it alone. Seek the help of a counselor or therapist to talk about your feelings. One of your most important duties will be to support the brain-injured person and help them deal with their emotions. Those who have a good handle on their own emotions first are better equipped to fulfill this extremely important role.
There is no clear roadmap to the future when it comes to a brain injury. Much is unknown. Frequent discussions with the brain-injured person’s physician, physical therapists, and nurses can help answer questions and figure out what’s next. The brain-injured person will most likely be distressed by the fact that he or she isn’t able to live life in the usual manner, but if you are able to focus on the treatment and rehabilitation ahead, as well as the prospect of recovery, that can alleviate some of the distress.
Coping with a brain injury patient can be very difficult, but there’s no reason why you have to do it alone. Coping will be much easier if you view yourself as part of a team with the brain-injured person’s doctors, nurses, and therapists. Remember, these people specialize in brain-injured patients, and understand their complex needs. Let them guide you.